Image Posted on
Below my mom who has stayed in the hospital with me a majority of the time is serving as my first guest blogger. She has written about her experience as serving as a primary caregiver for myself. This is the perspective of a mother who is a primary caregiver to a daughter with a chronic disease. Enjoy!
Anyone that really knows Chanda and myself you would think that we are like oil and water! Well WRONG! LOL. We will argue about the color of grass and the sky! We bump heads about everything! Sometimes we just argue to argue! Well guess what? We figured out that we are so much alike. Does Chanda love me? YES! Do I love Chanda? YES! Well I heard a sermon a few months ago “The Other Side of Through” So now when things get tough I remember that sermon. Now you just can’t think this is a one time thing! You may be going through several things at one time but it still applies! I have been going through a lot these past few years, but nothing could have prepared me for “THIS”. Day after day watching my daughter in pain, vomiting and crying just rips my heart out! Feeling so helpless. All I wanted to do was take her pain away! Chanda, the one who wants to save the world! Chanda, the sassy confident, beautiful young lady. Chanda, the one willing to put everything on the line if she is right! Chanda, the one with that big grin on her face! Chanda, the one that believes in God, Family, Friends. Chanda, the fashionista! Chanda, the one just like her late grandmother who’s favorite show is The Food Network! Chanda, such a smart women! Chanda, the spoiled one. Chanda, the good friend! Chanda, the great sister! Now one more thing I can add Chanda the STRONG one! She maybe 26 but when I hear her in the middle of the night in this oh so quiet voice say” mommy my bag leaked, I’m sorry” She did not ask for this to happen to her body, but she is just rolling along one day at a time. On one of the many trips to the hospital since the 18 th of November I watched the nurses attempt to start an IV 6 times and Chanda did not say a word or complain. I can’t even remember how many times the IV infiltrated and to find a new site to start a new IV.
I tell her this is just a test and when it’s over she will have a testimony!
On a lighter note you should see us changing her bag! We looked like the two stooges!
Till I blog again……